Compassionate Person-Centered Care For The Dying

Item Information
Item#: 9780826122476
Edition 01
Author Freeman, Bonnie
Cover Paperback
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A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dyingA valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and
ings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them.--Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPNProfessor and Director, Division of Nursing Research and EducationCity of Hope National Medical CenterFrom the ForewordThis ground
eaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible.The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved.Key Features:Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve careClarifies the current and often complex literature on care of the dyingIncludes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES toolBased on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice GuidelinesBonnie Freeman, DNP, ANP, RN, ACHPN,is an adult nurse practitioner in the Department of Supportive Care Medicine at the City of Hope National Medical Center in Duarte, California. She is involved with treating the symptom management needs of many chronically and terminally ill individuals diagnosed with various forms of cancer. Dr. Freeman trained at such excellent facilities as the in-patient units at San Diego Hospice and the Institute of Palliative Medicine in San Diego, California, and the home care hospice program in Owensboro, Kentucky. While in Kentucky, she completed her advanced practice clinical training for adult nurse practitioners with a specialty focus on palliative care through Vanderbilt University in Nashville, Tennessee. This program exposed Dr. Freeman to current concepts in caring for the dying, and enhanced her already significant clinical experience caring for dying individuals acquired from over 30 years working in critical care. Dr. Freeman obtained her MSN from Indiana Wesleyan University, and her DNP from Azusa Pacific University in Azusa, California.ContributorsTracey Das Gupta, MN, RN, CON,is director of Interprofessional Practice at Sunny
ook Health Sciences Centre in Toronto, Ontario, Canada. She is also the colead of the Quality Dying Initiative with Dr. Jeff Myers. Tracey has been passionate about health care, quality of life, and leadership since becoming a nurse in 1991. Her decision to become a nurse was influenced by her father who lived with muscular dystrophy. Ms. Das Gupta has fulfilled various frontline nursing roles along the continuum of care and has had the opportunity to continue to grow in leadership roles such as educator, professional practice leader, and director of nursing practice. In her current role, she also provides leadership for the development and implementation of Sunny
ook's interprofessional care (IPC) strategy.Margaret Fitch, PhD, MScN,is a nurse researcher and holds an appointment at the Bloomberg Faculty of Nursing and School of Graduate Studies at the University of Toronto. She also serves as expert lead for cancer survivorship and patient experience for the Person-Centered Perspective Portfolio of the Canadian Partnership Against Cancer. She is also editor-in-chief for theCanadian Oncology Nursing Journal. Dr. Fitch has an extensive publication record based on her many years of research regarding patient perspectives, coping and adaptation with illness, and screening for psychosocial distress. She has particular expertise in measurement and evaluation, qualitative methods, and knowledge integration. During her career, she has held clinical and administrative positions and has maintained an ongoing role in education of both undergraduate and graduate students and health professionals in practice.

Short Description
This ground
eaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author’s research-based CARES Tool, a reference that synthesizes five key elements demonstrated to enable a peaceful death as free from suffering as possible: Comfort, Airway Management, Management of Restlessness and Delirium, Emotional and Spiritual Support, and Self-Care for Nurses. The book describes step-by-step how nurses can easily implement the basic tenets of the CARES Tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible.

Table of Contents
ContentsForewordBetty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPNPrefaceProloguePART I: CARE FOR THE DYING1.Introduction to the CARES Tool2.History of Caring for the Dying3.Goals and Objectives When Caring for the Dying4.Establishing Care of the Dying as an Acute Event5.Identifying the Most Common Symptom Management and End-of-Life Needs of the DyingPART II: THE CARES TOOL6.CARES Tool: Organization and Considerations7.Comfort8.Airway9.Restlessness and Delirium10.Emotional and Spiritual Care11.Self-CarePART III: FOUNDATION AND USE12.Theories of Self-Transcendence and Structure of Caring13.Importance of Advocacy14.Achieving Compassionate Communication15.Promoting a Peaceful Death16.Case StudiesPART IV: BARRIERS AND CHALLENGES17.Changing a Culture18.Translating Current Literature Into Evidence-Based Practice: The Role of the DNPPART V: ADDITIONAL APPLICATIONS19.A Nursing Model for Care of the Dying20.Versions and Influence of the CARES Tool21.Preserving HopePART VI: LEADING CHANGE—STORIES AND PERSPECTIVES FROM SUNNYBROOK22.Knowledge Translation for Effecting Practice Change23.Leading Change—Stories and PerspectivesPART VII: CONCLUSIONS AND RESOURCES24.Summary of Steven’s Peaceful Death25.Recommended Learning Resources for Care of the DyingIndex